Series Combats Disorders: First Up, Epilepsy

caveat logo.JPGPeople with epilepsy were once thought to be possessed by demons or evil spirits. Dubbed “the sacred disease,” epilepsy was profoundly misunderstood for centuries, even after the disorder was explained to be of human origin. So why is it, so many years later, that epilepsy is still not fully understood? And why is there still so much stigma attached to a disorder which affects approximately one in 26 people in the United States?

Caveat NYC, BraiNY, and the Epilepsy Foundation are attempting to eliminate that stigma. Last week saw the first part of a three-part event series, titled “A Lot On The Mind: Epilepsy.” Held at Caveat at 21 A Clinton St. in Manhattan and open to the public, tickets are $15 each. Each event in the series is hosted by Stephanie Rogers, a Ph.D. candidate at New York University and an adjunct instructor at Fordham University. The series focuses on educating and demystifying misconceptions on epilepsy, autism, and Huntington’s Disease.

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Stephanie Rogers. Photo: Caveat NYC

Rogers, whose sister suffers from untreatable epilepsy, began by showing slides that explained the origins and causes of epilepsy. They include brain infection, head trauma, brain tumor, and stroke, as well as a genetic link. However, as Rogers explained, the cause of epileptic seizures remains a mystery in many patients. Continue reading

Dana Launches New Cerebrum Podcast

E-May-Epilepsy

For almost a year, we’ve featured the authors of our monthly Cerebrum articles in a Q & A. With the May Cerebrum article, “A New Approach for Epilepsy,” we are transitioning to a podcast.

Why are we taking this new approach? We suspect that visitors to the website, with already quite a bit to read, will welcome an audio option. We also think it will be valuable to hear some of the top researchers in the field offer their opinions and explain some of the complex biological, neurochemical, or genetic advances that they write about in Cerebrum, the Dana Foundation’s research-based publication.

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Epilepsy Awareness Month

While epilepsy ranks fourth in most common neurological disorders, there are still common misconceptions about the condition, which can develop at any age. In the US alone, 1 in 26 people will develop epilepsy at some point in their lifetime.

Photo courtesy of Roberto Tuchman

Photo courtesy of Roberto Tuchman

With November being “National Epilepsy Awareness Month,” we spoke to Roberto Tuchman, M.D., who is the director of autism and neurodevelopment programs at Miami Children’s Hospital. Tuchman founded the hospital’s Dan Marino Center for children with developmental disorders and gives lectures around the world on the topics of epilepsy, autism, and learning disorders. He is also a Dana Alliance member.

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A Ghostly Presence

Walking through New York City’s Chelsea Market Wednesday evening, it was hard not to notice the macabre graveyard scenery, hanging ghosts, and appendages crawling out of the walls. There was even an installed pipe coming out of the ceiling that had a torrent of “red water” falling into a sinkhole with zombie mannequins creeping out. It was entertaining, to say the least, and visitors were loving it.

But what is it about Halloween that gets people so worked up? Surely, it can’t be just the candy—that can be found on store shelves all year round. For a brief moment, the month of October allows us to unearth our fascination with morbid ideas such as vampires, haunted houses, and ghosts. Beyond the grisly decorations, there are varying superstitions about apparitions and the otherworldly in cultures throughout the world; but how do we explain the unintentional occurrences that spook us into believing in ghosts?

Credit: Shutterstock

Credit: Shutterstock

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The Epilepsy Conundrum

Robert Gumnit, M.D., founder of the first comprehensive epilepsy center in the United States, says the way patients and doctors deal with seizures is like a comedy routine, except it’s not funny: a man has a seizure and thinks to himself, That’s odd. If it happens again I’ll tell my wife. It happens again, so he tells his wife; she says, That’s odd. If it happens again you should tell a doctor. It does, so he tells his doctor, who might say, I’m not sure what happened to you. Why don’t we wait to see if it happens again?

“As a result,” Gumnit says, “the identification of the patient who needs treatment is delayed, often by many, many years. That puts the patient behind the 8-ball because the more seizures you have, the harder they are to treat.”

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