People with epilepsy were once thought to be possessed by demons or evil spirits. Dubbed “the sacred disease,” epilepsy was profoundly misunderstood for centuries, even after the disorder was explained to be of human origin. So why is it, so many years later, that epilepsy is still not fully understood? And why is there still so much stigma attached to a disorder which affects approximately one in 26 people in the United States?
Caveat NYC, BraiNY, and the Epilepsy Foundation are attempting to eliminate that stigma. Last week saw the first part of a three-part event series, titled “A Lot On The Mind: Epilepsy.” Held at Caveat at 21 A Clinton St. in Manhattan and open to the public, tickets are $15 each. Each event in the series is hosted by Stephanie Rogers, a Ph.D. candidate at New York University and an adjunct instructor at Fordham University. The series focuses on educating and demystifying misconceptions on epilepsy, autism, and Huntington’s Disease.
Rogers, whose sister suffers from untreatable epilepsy, began by showing slides that explained the origins and causes of epilepsy. They include brain infection, head trauma, brain tumor, and stroke, as well as a genetic link. However, as Rogers explained, the cause of epileptic seizures remains a mystery in many patients. Continue reading